WXXI AM News

Inclusion Desk

There's a lot going on in the local autism community: The U of R has the brand-new Levine Autism Clinic. On South Avenue, there are plans for the new Golisano Autism Center. And this weekend, national experts will be in town to give talks, run workshops, and help lead a conference on autism. So what does the latest research tell us? Our guests:

  • Suzannah Iadarola, Ph.D., assistant professor of pediatrics at UR Medicine’s Golisano Children’s Hospital
  • Chris Hilton, mother, and finance and operations director for AutismUp
  • Terrie Meyn, COO of CP Rochester

This conversation is part of WXXI’s Inclusion Desk, spotlighting issues related to disabilities. The WXXI Inclusion Desk is part of Move to Include — a partnership to encourage thoughtful discussion about issues of inclusion and the differently-abled.

Randy Gorbman / WXXI News

Area law enforcement agencies joined dozens of Special Olympics athletes on Friday for a torch run from Gates Town Hall to Downtown Rochester.

The event raises money for Special Olympics, and that’s something that participants like Kenny Moriarty of Rochester really appreciate.

“It’s incredible, the flames and the running, you’re doing the exercise.” Moriarty also told WXXI News he really appreciates “the sponsors and all the thanks and all the help we get.”

The repeal of the Affordable Care Act could have some unintended consequences on the most vulnerable: children with disabilities. On this special Move to Include edition of Need to Know we’ll learn how special education in our public schools may see unbearable funding cuts.

Also on the show, some local disability rights advocates were recently detained outside the White House. We’ll discuss what they’re calling on President Trump to do and if he’s responded.

And a complex journey for a local artist unfolds on canvas. How local talent is awakening our understanding of deaf culture through art.

Move to Include and the Inclusion Desk is a partnership between WXXI and the Golisano Foundation designed to promote inclusion for people with intellectual and physical disabilities.

Area lawmakers gathered at the Gates Chili High School field house Thursday to announce $200,000 in state funds to help expand Unified Champion Schools.

That's a program that brings together students with and without intellectual disabilities through education, sports and youth leadership.

It promotes inclusion through shared sport training and competition experiences.

Neal Johnson is the president and CEO of Special Olympics-New York.   He says this program can help battle issues like bullying and harassment.

Golisano Autism Center to be built in Rochester

May 16, 2017

Several agencies are working together on a new facility to provide comprehensive services for the more than 10,000 people diagnosed with autism in the Greater Rochester and surrounding area.

The Al Sigl Community of Agencies, along with the Mary Cariola Center, AutismUp and CP Rochester are collaborating on the new Golisano Autism Center to serve the greater Rochester region.

gigisplayhouse.org/rochester

GiGi’s Playhouse, a nationwide network of Down syndrome achievement centers is opening its 32nd location in Rochester.

The concept was started in Chicago by Nancy Gianni who named the organization after her daughter who was born with Down syndrome in 2003.

Chris Tumminelli is on the board for the Rochester location, and said as a father of a son with Down syndrome, spaces like these are vital.

Dozens of people from Rochester took part in Monday’s Boston Marathon, but perhaps none were as thrilled to take part in the race as two women, Marie Boudreau-Ninkov  of Brighton and Onni Peck of Fairport.

Peck suffers from a progressive neuromuscular disease and she sat in a specially designed buggy pushed by Boudreau-Ninkov.

The Brighton woman has run several Boston Marathons, but she says nothing compares to this experience.

tippingpointmedia.com

The Arc of Monroe County held an annual event that celebrates people with developmental disabilities and their willingness and ability to get jobs within the community.

Around 100 business leaders and hiring managers attended the event, which is designed to cultivate a diverse workforce.

The Arc of Monroe's Job Path program is the region's oldest and largest training and placement service for individuals with disabilities, according to Arc CEO Barbara Wale.

Rochester is home to the nation's largest deaf population per capita, and throughout the years, the city has been praised for its efforts to promote accessibility and inclusivity among the deaf community. Kodak and Xerox provided jobs for deaf people, local hospitals led the way in staffing interpreters, and this year, NTID is teaming up with the University of Rochester to offer training and resources for deaf scientists. In 2006, the New York Times said, “It is here that the world of the deaf intersects the world of the hearing as in no other city.”

Despite all of this, there are still misconceptions among the hearing community that impede further progress. This hour, we talk to members of the Deaf community about Deaf culture, the challenges they face, and what they hope to see for a more inclusive future. Our guests:

  • Matthew S. Moore, president of MSM Productions, Ltd, author of For Hearing People Only, and publisher of Deaf Life Magazine
  • Matthew J. Schwartz, ASL teacher at Rush Henrietta High School, ASL coach, and performer
  • Darcy O'Dell, interpreter
  • Anthony Bizzarro, interpreter

This conversation is part of WXXI’s Inclusion Desk, spotlighting issues related to disabilities. The WXXI Inclusion Desk is part of Move to Include — a partnership to encourage thoughtful discussion about issues of inclusion and the differently-abled. You can watch this conversation, with captions, on City 12 or at:

Karen Shakerdge/WXXI

One disability rights activist says that often people are too quick to assume someone with a disability can’t make their own decisions. Emily Ladau, a writer and editor in chief of the Rooted in Rights blog, visited Rochester recently to raise awareness about a different way of thinking called self-direction.

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