WXXI AM News

dialogue on disability

We learn about two local organizations that provide recreational activities for people with disabilities: the Challenger Miracle Field and EquiCenter. Our guests share their experiences and the impact these organizations have had on our community. In studio:

  • Ron Kampff, president of Challenger Miracle Field of Greater Rochester, and coach for the Webster Challenger Team and the Rochester BEEP Baseball Team (Rochester Pioneers)
  • Nico Santiago, Challenger player
  • Karen Werth, operations and therapeutic riding instructor for EquiCenter
  • Barbara Stickney, veteran and participant at EquiCenter

This conversation is part of WXXI’s Inclusion Desk, spotlighting issues related to disabilities. The WXXI Inclusion Desk is part of Move to Include, a partnership to encourage thoughtful discussion about issues of inclusion and the differently-abled.

An international disability rights activist known for his work in native Saudi Arabia is in Rochester. Mohammed Saad joins us to talk about his work to make a variety of every day life experiences more accessible for the visually impaired, including cooking, using technology, and event photography. He's our guest for the hour. 

There's a lot going on in the local autism community: The U of R has the brand-new Levine Autism Clinic. On South Avenue, there are plans for the new Golisano Autism Center. And this weekend, national experts will be in town to give talks, run workshops, and help lead a conference on autism. So what does the latest research tell us? Our guests:

  • Suzannah Iadarola, Ph.D., assistant professor of pediatrics at UR Medicine’s Golisano Children’s Hospital
  • Chris Hilton, mother, and finance and operations director for AutismUp
  • Terrie Meyn, COO of CP Rochester

This conversation is part of WXXI’s Inclusion Desk, spotlighting issues related to disabilities. The WXXI Inclusion Desk is part of Move to Include — a partnership to encourage thoughtful discussion about issues of inclusion and the differently-abled.

SASHA-ANN SIMONS/ WXXI NEWS

With 10 minutes left to go in his private session at CP Rochester, a little boy took the hand of physical therapist, Karen Terp, and led her to the hallway for an afternoon stroll.

“You want to walk? Ok,” Terp said.

Have you heard the term, “inspiration porn?” A recent episode of the sitcom Speechless on ABC explored the subject. It refers to when able-bodied people characterize people with disabilities as objects of inspiration or one-dimensional saints because they live with physical or developmental differences.

People with disabilities and disability rights activists say the term can be harmful and insulting because examples of “inspiration porn” are usually meant to benefit able-bodied people. They point to memes like the one featuring a swimmer with one leg and the phrase, “The only disability in life is a bad attitude.” Critics also say the term shifts focus away from challenges faced by people with disabilities – accessibility, high unemployment rates, and more.

We explore different perspectives on the issue, and discuss how to create more inclusive environments. Our guests:

  • Brendan O’Riordan, communications officer for the Monroe County Sheriff’s Office who was born with cerebral palsy
  • Dresden Engle, PR professional, actress, and mother of a 5th grader with cerebral palsy
  • Dr. Cyndi Kerber-Gowan, faculty member in the School of Education at Nazareth College, and faculty liaison for the LifePrep@Naz program
  • Bob Ike, superintendent of Palmyra-Macedon School District

This program is presented as part of Dialogue on Disability Week – a partnership between WXXI and Al Sigl Community of Agencies – in conjunction with the Herman and Margaret Schwartz Community Series. Dialogue on Disability is supported in part by The Golisano Foundation with additional support from the Fred L. Emerson Foundation.

It was Pablo Picasso who said “Art washes from the soul the dust of everyday life.” So to what degree can art heal, bring peace and lead to recovery in particular for those battling mental health disabilities? On this edition of Need to Know we learn about the impact of creative arts and other forms of therapy and treatment for mental illness.

The college and career conversation is a big deal for young people leaving high school. For individuals with intellectual disabilities, there was a point in time when such conversations didn’t happen. However, gains are being made in part because of the Higher Education Opportunity Act and because of parents and advocacy groups fighting for better access to postsecondary education. Now, there are more than 200 programs on college campuses around the United States, including a handful in Rochester, making the transition from high school to college and career possible for this demographic.

On this edition of Need to Know, the college and career conversation is a big deal for young people leaving high school but for individuals with intellectual disabilities, there was a point in time when such conversations didn’t happen. However, gains are being made in part because of the Higher Education Opportunity Act and because of parents and advocacy groups fighting for better access to postsecondary education.

What would change if you found out, overnight, that your life expectancy had doubled? Maybe a lot. Maybe nothing. But for Gabe Weil, it changed everything: he had muscular dystrophy, and understood what that meant. A film called Gabe tells his remarkable story -- a story of confronting actual life-and-death choices on a daily basis. For Gabe, that meant deciding whether to eat real food or get a G-tube. It meant travel and risks that could end his life.

Our Dialogue on Disability series continues with a preview of the film, which is showing this week at the Little Theatre, and a conversation with Jonathan Piacentino, who is navigating life with his own challenges and difficult decisions. Our guests:

  • Jonathan Piacentino, graduate of Nazareth College, and muscular dystrophy awareness advocate
  • Heidi Schuster, supervisor of the adult day habilitation program at CP Rochester

This program is presented as part of Dialogue on Disability Week – a partnership between WXXI and Al Sigl Community of Agencies – in conjunction with the Herman and Margaret Schwartz Community Series. Dialogue on Disability is supported in part by The Golisano Foundation with additional support from the Fred L. Emerson Foundation.

Transporting those with special needs

Jan 24, 2017
alsigl.org

Medical Motor Service is marking over 90 years of meeting the transportation needs of seniors and people with special needs, and is on its way to logging another four million miles this year.

That's according to Executive Director Damon Mustaca, who says they play an important role in the everyday lives of many people in Monroe County.

"Fifteen thousand people used us and 4.4 million miles traveled last year, to provide almost 600 thousand one-way trips to the community," he said.

Mustaca says they provide access to vital services to the community.

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